Showing posts with label church and the special needs child. Show all posts
Showing posts with label church and the special needs child. Show all posts

Thursday, December 25, 2014

The Perfectly Imperfect Christmas

Hope and me seated on the floor, just outside the sanctuary at Broadstreet United Methodist Church

It came in the mail, a rather ordinary invitation probably sent to the entire city.  A mass mailer.  Those things we all hate.  The 5 X 7 card said my family was invited to attend the Christmas Eve service at Broadstreet United Methodist Church.  My perfectly imperfect family invited to what would be a perfect Christmas Eve service, one that had probably been planned and rehearsed for weeks.  I read it aloud to Lydia and actually smirked when I said:  "Oh, OUR family is definitely not invited!"  Then I tossed it in the garbage. 

The entire week, I thought about that invitation.  I couldn't get it out of my mind.  'Were we really invited?' I wondered.  Would they accept two non-verbal kiddos who make lots of random (sometimes loud) noises?  Would they show grace and mercy to a couple of little ones who are unable to sit still?  There was only one way to find out.  

We arrived at 10:45pm.  

While unloading Hope and Charlie from the car, a homeless man approached us with his arms raised, "May I approach you, Ma'am?"  I honestly didn't have any cash to give him, but I told him we were going to the church on the corner and asked if he was planning to attend.  He said something I couldn't understand and shook his head.  In response, Hope melted, likely feeling unsure about the stranger, so I ended up hauling all 50+ pounds of her down the sidewalk, up the steps, and into the church.  
'Is our family invited?'

We made our way up into the balcony (uhhhm, yes, I was still carrying Hope) and onto the back row.  Why they began the evening with a trumpet solo, I cannot fathom.  But they did.   Charlie, to everyone's surprise, immediately began to mimic the sound....and was actually louder and more shrill than the trumpeter.  After being seated for all of two or three minutes, we quickly rose to our feet, scooted at maximum speed out of the balcony with horn baby in tow, and made our way back down the steps.  
'Is our family invited?'

We decided to have a seat in the floor, just outside one of the doors leading into the sanctuary.  We literally plopped right onto the floor.  All was going fairly well, too, until the homeless guy waltzed in and made a bee line straight for us.  I still couldn't understand anything he said, only something about "the children", but he seemed nice enough.  And Hopey began making giggling noises at him.  One of the church workers eventually came and offered the man a seat in the church.  And after getting him situated, the worker returned to us, bent down on the floor, and spoke to both Hope and Charlie.  The kindness in his voice caused me to well up and nearly bawl.  
'Our family is invited.'

The message centered around the shepherds who were the first to get news about the newborn King of Kings.  They were considered the lowest of the low in that time, the poorest of the poor.  My mind immediately went to the homeless man.  The shepherds were probably a lot like him.  Sleeping outside must have made them dirty.  I bet their hair was wiry and clothes tattered.  The homeless man was seated in a pew in that church just like everyone else.  He may of been seated next to someone accomplished, well educated, or wealthy.  It didn't matter.  He was listening to the message of Good News.  The BEST news.  The news that was and is for ALL people.  
'The homeless man is invited.'

The evening ended with communion.  An usher, not forgetting us, brought communion to us....in the floor.  He didn't act like it was odd that everyone else in the church was seated in either a pew or a chair.  Honestly, he didn't seem to notice.  Following communion, candles were lit and the moment we'd all come for began.  It was finally midnight; the chimes tolled twelve times.  Christmas had officially arrived.  We gathered our two special ones and took them into the sanctuary to be engulfed by the worship of the One who came to earth so OUR family could be invited....so the homeless man could be invited....so we ALL could be invited.

Hope couldn't contain her joy.  Her arms flapped wildly as a smile took over her entire face.  "This is for you,"  I whispered in her ear, having a difficult time containing my own delight, "Jesus came and did all of this for you."

Maybe you found an invitation in your mailbox this holiday season just like I did.  Or maybe you didn't.  The true invitation is an open one that doesn't come in the form of a 5 X 7 card, but instead, comes wrapped in swaddling cloths as a baby.  God came to earth to change the world; He came because of His absolute boundless love for you!  
YOU are invited!

Merry Christmas!


Monday, April 14, 2014

The Heart Of Worship...Jubilee

"Worship" triggers many responses:


RaIsEd HaNdS... Dancing...   singing...
    TEARs...    Shouts of Joy...  Corporate Prayer...   {PEACE}...


But for Jubilee, a teenage girl with Multiple Sclerosis who attends our special needs church service each week, it means all these things and much more.

Tugging on my arm:  "Ma'am, Ma'am,"  Jubilee always calls me Ma'am, even though I've told her my name dozens of times, "God gave me a new song and I want to sing it for you."

Lydia and I were in the church sanctuary waiting on everyone else to arrive.  The blind teenager who depends upon a walker was already sitting down on the front row.  "Sure, we'd love to hear it,"  I said, just as she began to sing:

"Angels watching over me...."

I couldn't understand all of the words, but I did catch those.  She began softly, but as the song progressed, her intensity grew and grew until she finally grabbed onto her walker, held it tight, and pushed it forward allowing herself to drop to her knees with a loud thump.  Instinctively, Lydia and I leaned forward to steady her, but she had everything under control.  

With Jubilee's head now bowed, and arms raised high, the song continued:  "His angels watch over me....His angels watch over you."  Lydia and I continued to look down upon the girl now kneeling on the floor, completely silent, careful not to do anything to disturb her.  The song became soft again until she, too, fell still and quiet.  She then pushed herself up, holding onto her walker, and said aloud:  "Thank you, Jesus, for giving me that song; it sure is a good song."  

After helping guide her back into her seat, we told her how much we enjoyed her singing.  She grabbed my arm once again and whispered:  "Ma'am, angels watch over Hope.  I'm praying God will help her talk."  (notice, she can remember Hope's name, but not mine.  hahaha!)

I lost my breath.  If the Lord is going to answer anyone's prayers, I thought, surely it is the prayers of Jubilee.  Then I hugged her.  Tight.  

"That really hurt my knees when I went down to sing,"  she said rubbing her knees with a giggle.

Lydia and I cracked up.  In response, Jubilee leaned back in the chair, slapped her leg and laughed out loud with us. 

Pretty soon the rest of our group lingered in, ready for worship to begin.  But I couldn't stop thinking about that brief time with a young girl most of the world looks over without notice each day....how she had a song to sing and sang it.  She didn't wait for the crowd to hear it.  She didn't have a four piece band backing her up.  Most of her words couldn't be understood, she didn't sing in key, and there was no rhythm to her simple song.  But it ranked up as high as all of the most beautiful melodies Lydia and I have ever heard.

Yesterday, Jubilee arrived at our church service extra early again.  This time, she asked if she could babysit Hope for me while we waited for everyone else to get there.  She and I, together, pushed Hope around and around and around the little church.    

"I'm a good babysitter,"  she said, out of breath from all the pushing and walking.

"You're the best,"  I replied, marveling at this girl so eager to serve others.

"I'm still praying that Hope will talk."

After wiping a tear and gathering my composure, I answered:  "And I think He's gonna answer that prayer."

"Me too." 

Oh, Father, give me Jubilee's heart of worship


Monday, March 31, 2014

Meet The "REAL" Jesus In The Special Needs Church


Most ministries begin with a goal; ours began with a purpose.  Unable to find a church home where Hope and Charlie could fit in, our family decided if we were to fellowship with other believers on Sundays, we'd have to step out and begin our own service.  So several months ago, in cooperation with a local church (The Refuge Church), we began a service specifically geared to meet the needs of the special needs community.  I'll be the first to unapologetically admit that we've smacked inclusion in the face, but it works.  

Our mission is simple as we set out to deliberately extend the love of Jesus to all people, regardless of ability or disability, by simply offering an opportunity for whole families to celebrate Him freely, without hindrance.  And the keyword here is "freely".  Can't sit still for 45 minutes?  Need to move around?  No problem.  Is your child non-verbal?  Does he/she make loud noises?  You'll fit right in.  Medically fragile?  Physically handicapped?  Bring it on.  This place is intentional.  No one is going to stare or judge.  Those who show up at this service, with the exception of the few who regularly come to support what we're doing, are walking the same walk.  Each time we meet, I welcome the experience as an escape from real life.

Each service begins with upbeat easy-to-sing-along-with music and closes with a prayer tunnel.  We started utilizing puppets several weeks ago, and were pleasantly surprised with the response.  Last week, a family brought several puppets to share with the group.  One of their sons, who has Autism, socked a dog puppet on his hand and stood up front next to me and my puppet, Rosey, before the service began.  For the sake of privacy, I'll call this little boy 'Smiley'.  'Smiley' has dark wavy hair, chocolate brown eyes, and sweeping eyelashes.  He is a gorgeous boy and is so smart, but he struggles with communication and some behavior issues.   With the puppet on his hand, he walked right over to me to show it off:

"Hey Rosey!"  (It never ceases to amaze me how the kids sometimes forget my name, but they never forget Rosey's) 

My puppet replied:  "Well hello there, what's your name little dog?"  

He quickly answered:  "I'm Ralph!"  (which was such a genius response for a whole other reason)

Rosey told him how happy she was to meet him and how she hoped he'd sing along with her when the music began.  The entire time Rosey spoke, his sweet face lit up like the sunshine.  When Rosey finally took a breath (she is sometimes way too talkative), he pointed above the stage with his free hand while still working the dog puppet with his other hand.  Creating a voice for Ralph, which was very unlike his own voice, he asked me about a sign hanging on the wall behind the stage:  

"What's that?"

The Refuge Church had added a large glowing detour sign to go along with their brand new quarterly sermon series.  I hadn't really paid that much attention to it, but this little guy had not only seen it, but was disturbed by it.  His dad had told me a few minutes earlier Smiley almost didn't walk into the sanctuary because of it...so I was prepared:

"I don't know, looks like a sign to me....a big orange glowing sign....what do you think about it?"  Rosey asked him in her high pitched voice, adding lots of her typical drama.

"It's a sign."  he replied, still working his puppet.

I continued through Rosey:  "It doesn't bother me.  I think that sign is just going to hang out up there on the wall and not bother us at all while we sing.  By the way, will you sing with me today Ralph?"  

"YEH!!"  Smiley replied, shaking the puppets head up and down.  

And he did.  When the music began, Smiley and his puppet remained up front, helping Rosey, me, and the others lead worship with songs.  

At one point, I used my puppet to bend down in front of Hope and Charlie to sing....Rosey kissed their cheeks....Hopey even reached out and hugged Rosey's furry body.  I didn't know "Smiley" was paying such close attention, but he was.  Next thing you know, he took his puppet and bent down to allow it to sing for Hope and Charlie, he then went over to an older gentleman sitting nearby and allowed his puppet to give the gentleman a kiss on his cheek.  The joy never left Smiley's face.  He led worship, openly sharing the love of Jesus.  He was comfortable... endearing...  charismatic... and perfect.

Later in the service, a new visitor raised her hand during prayer requests and asked if she could say something.  I'll call her Jubilee.  This young woman has Multiple Sclerosis, is legally blind and dependent upon a walker.  Though her words and thoughts form easily, delivery is difficult.  I had already watched her letting go of her walker to raise her hands during praise and worship, singing out with her whole heart, so I was anxious to hear what she had to say (this is me trying to remember it all):

"I had MS since I was four.  I went to the doctor because I was in so much pain.  I asked God to take my pain away because it was so bad.  My parents put me in a mental facility and I was there for a lot of years until my aunt and my grandmother got me out.  My time there was very bad.  When I got out I was baptized in February.  He saved me.  I'm still in a lot of pain but I trust Him and I want to tell everybody that Jesus loves me and He loves you too."

A few other people shared and then Jubilee's hand shot up once again.  She had something else to say:

"Can I sing a song for everybody that I wrote?" she asked. 

Well of course we all wanted to hear it.  She made her way up to the front, sat on the edge of the stage and sang a song written from her heart called: "Don't Give Up".  I imagine it had been her battle cry for those years she was shuffled from one treatment center to another.   She sang it again for us during last night's service.  Blind, body wrecked with pain, Jubilee became a minister, leading worship as she openly shared the love of Jesus.  She was comfortable... endearing... charismatic... perfect. 

There's another woman.  She's in her thirties and her disability has never been diagnosed.  I'm going to call her "Ruby" because to me, she has become a treasure.  "Ruby" loves my Charlie.  I mean, she LOVES Charlie.  She can't say his name, so she calls him "C" along with giving the sign for "C".   Each week, when Ruby walks in, she immediately begins to bellow:  "C"...."C"...."C" .   Charlie, sitting in his stroller, is then pushed away from me to go along and sit with Ruby and her momma.  Charlie, at age 5, has a mix of Down syndrome and Autism.  If left to his own devices, he'd be happy to stay in what we call "Charlie's World" most of the time, not interacting with anyone.  

Well, for two hours each Sunday evening, Charlie can count on being yanked out of "Charlie's World" by Ruby.  She dotes on him, pets him, picks at him, gets down in his face and says:  "C"...."C"...."C"  over and over and over again.  She kisses him, hugs him, and pushes him in that stroller through the building.  Ruby absolutely showers the love of Jesus upon my little Charlie every week, and in the process, she ministers to me.  Ruby is comfortable... endearing... charismatic... perfect.

I could tell you more stories..... about a mother who's teenage son was kicked out of school by people who couldn't understand his disability....about how she is teaching him to continue to stand with a heart of forgiveness in the face of adversity and to be strong in the Lord..... 

I could go on for days about the father who patiently dances with his daughter each week because he can't resist how she comes to life with the most infectious laughter you've ever heard when the music begins... I could tell you about how this little girl has impacted my own daughter's life....about how Lydia can't wait to see her each week.

I could share with you about a single mom who has adopted two beautiful girls....about how she sacrifices so they can have all they need...

and I could also tell you about two parents who spend hours teaching their young son to recite scripture so he'll be ready for a world that won't always accept him... and about how they're teaching their daughter to come alongside him as an encourager and helper. 

For me, this is church!  This, I believe, is a place where Jesus might choose to come and worship if He were still physically living among us today.  In my mind's eye, I can see the Savior hoping Smiley would use his dog puppet to give Him a kiss on the cheek.  He'd probably raise His hands and sing along to Jubilee's song:  "Don't Give Up!"  And who knows?  Ruby might nickname him "J".

At one time I wondered if Jesus were to show up, would He put on a big healing service and heal them all?  Would He give Hopey words to speak?  And heal her heart defect?  Would He bring Charlie out of "Charlie's World" for good.... and would He give sight to Jubilee?  A "normal" life to Ruby?  With one big swoop of His outstretched arms, would He bring complete healing to them all?  

I don't believe He would.  That thought doesn't even cross my mind anymore.

Worshipping with these precious ones who have been perfectly and purposely created has taught me they are the true ministers of the gospel.  Through the veil of something society has deemed to be a disability, the Father has imbued these special soldiers with the supernatural gift of being real.  Like Him.  And the truth is, they can be nothing less.  No masks.  No hidden agenda.  No false pretenses.  Uninhibited, they are child-like, free, and present.  

And that's who I want to be.  

If something frightens me or makes me uncomfortable, I want to muster the strength and honesty of Smiley....to find a way to verbalize my fears and insecurities instead of hiding them.  

When God places a song in my heart, I want to have the courage of Jubilee to get up in front of a crowd and sing it with abandon.  And when my heart is overflowing with love for Jesus, I want to have Jubilee's unwavering excitement to raise my hand and share my story. 

And finally, when someone around me is in need, I want to have Ruby's keen perception.  Oh, to have her unwavering compassion, willing to pour myself out for others with nothing to gain from it. 

This is our ministry.  This is our Jesus.  This is our life.  If you are ever in the Nashville area on a Sunday evening, please come meet Smiley, Jubilee, and Ruby for yourself.  Consider this an open invitation to come see Jesus in a brand new way!