Saturday, May 29, 2010

MRI News!

We were at the hospital much longer than intended yesterday. An emergency case came in by helicopter and took Hopey's spot, so we "semi-patiently" waited our turn. Hopey was supposed to have her MRI at 10am, but wasn't taken back until 1pm. She wasn't allowed to have any food after midnight the night before, so the little thing was so hungry. On top of hunger pains, she is petrified of the hospital and clung to my neck the entire time with wild eyes of pure fear. The day was exhausting.

We thought Hope was only going to have light sedation for the tests, but turned out, they used a full breathing tube on her and knocked her out completely. She came out of sedation with a horrible sore throat and pure delirium. At one point, she threw her head back and knocked my cheek so hard I saw stars. If you see me with a black eye, you'll know where it came from.

The MRI tests were somewhat positive, so we are taking the bit of good news and celebrating BIG TIME!!! The aneurysm is not impacting her Lungs or her Coronary Artery which would have required IMMEDIATE surgery! Praise the Lord!!!

Hope's aneurysm is indeed larger, and appears to be increasing in size even though the rate of change is unknown. The cardiac team will meet together next week (a team of 16) to discuss her MRI at length and will make a recommendation to us or will present a plan to us. Until then, we wait and hold onto the good news we received.

The team is still uncertain whether the aneurysm will rupture or not....and if it does, they do not know what that would mean for little Hope. Some believe it could be catastrophic while others believe we would have time to get her to the hospital to have the hole repaired. Never having seen anything like this before, they just don't know what to do. In addition, since the surgeon could not find the aneurysm during Hope's open heart surgery six months ago, the team is not optimistic he could find it if they opened her chest cavity up again to attempt to remove it again anytime soon. (The aneurysm can be seen clearly when her heart is pumping; however, when her heart is stopped for surgery, the aneurysm blends in with the rest of her heart muscle.) We can tell by what is "NOT SAID" as much as by what "is said" that the cardio team would like to surgically do something about the aneurysm.....but they remain conflicted.

Thank you for all of your prayers; honestly, we felt each one of them yesterday. For the first time in a long time, I was able to actually breathe in the hospital without feeling like I might hyperventilate at any given moment. The Father's hands held me safe all day.

During our long wait yesterday, Lydia sent a verse from Psalms to us via text. It was perfect: "May the Lord answer you in the day of trouble. May the Lord defend you. May He send you help from the sanctuary. May the Lord fulfill your petitions."


  1. Thank you, God, for Hope's good news and for giving this family reason to celebrate! :)


  2. We will take all the good news we can get!! Glad the docs are "conflicted" as you put it because until the path is clear, even just one tiny step at a time (which is all the Lord calls us to do) is all we can and should take. Does that make sense. I am hot and tired and not sure my thoughts are coming out right. But you know my heart and that it joins you in praise and prayer. Sarah

  3. So happy to hear some hopeful news! My family and our church are praying for her.

  4. Glad for some good news and hopefully in that meantime they can come up with a plan idea. Praying for you and your family at this highly stressful time. Hugs

  5. Wow, praise God for the good news! Prayers will continue so that the conflict of surgery/no surgery will be removed. The verse is beautiful and so timely! Blessings!

  6. Such a blessing that you received some good news to hold onto! I was praying for you all day on Friday and will continue to pray for you all and for wisdom for the cardiac team. PTL!

  7. Hi there! I found your blog a few weeks ago and have been casually following along. I just want to say that my prayers go out to your precious daughter and your family! I am going to grab the button from your blog and put it on my blog! I truely adore your story and it has touched my heart.

  8. Hang on to that bit of good news for dear life. The uncertainess is so hard. I'm so sorry but so glad Hope doesn't need immediate surgery. She will always be in my prayers.