The first photo is Hope looking away from Dr. Doyle, her cardiologist, in hopes that if she ignores him long enough, he'll go away. The second is Hope's happy, but still a bit apprehensive, face when there are no docs or nurses in the room. She is still very afraid when we pull into the Vanderbilt Children's Hospital, but who can blame her?
The report: Hope has a little backflow issue with her aortic valve and the "Love Balloon" remains an issue as well. We will take her back in six months to evaluate for changes; if there are none, she will not have to be seen for another six months.
On a positive note, we met a terrific family at the hospital this morning who also has a four year old with Down Syndrome. His name is Ben. Ben's father is a Delta Ranger, Special Forces, and has served our country in the military for 24 years. I mentioned the club a parent automatically becomes a part of when he/she has a child with Down Syndrome in a post a few weeks ago. It is amazing, but true. Meeting this family from Kentucky today was like seeing old friends we have known our entire lives. When you have special needs children in common, there is a unique bond that is created.....it is just one of the many perks, I guess.
Thank you for your prayers and thoughts today. We will continue to walk in faith daily for our little girly girl.
"Now faith is the assurance that what we hope for will come about and the certainty that what we cannot see exists" Hebrews 11:1